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Larsen, Marie Hamilton
(2024).
Self management focus within the Physical activity in childhood cancer survivors study (PACCS) .
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Steindal, Simen Alexander; Ohnstad, Mari Oma; Heggdal, Kristin; Karlsen, Marte-Marie Wallander; Aagaard, Hanne & Sørensen, Kari
[Show all 13 contributors for this article]
(2023).
Use of non-invasive ventilation in the palliative care of patients with chronic obstructive pulmonary disease: a scoping review.
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Larsen, Marie Hamilton; Larsen, Elna Hamilton; Ålykkja, Anette; Underhaug, Katrine Aass; Ruud, Ellen & Lie, Hanne Cathrine
(2023).
The Post-it note just said leukaemia -experiences of teachers and local stakeholders supporting young childhood cancer survivors at school: A qualitative study .
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Larsen, Marie Hamilton
(2022).
Kronisk sykdom, samvalg og helsekompetanse.
In Jakobsen, Rita; Bergland, Ådel; Hillestad, Adelheid Hummelvoll & Smebye, Kari Lislerud (Ed.),
Avansert klinisk allmennsykepleie i kommunale helse- og omsorgstjenester.
Cappelen Damm Akademisk.
ISSN 9788202660727.
p. 230–269.
Show summary
Kapittel 11
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Larsen, Marie Hamilton; Larsen, Elna Hamilton; Ålykkja, Anette; Underhaug, Katrine Aass; Ruud, Ellen & Lie, Hanne Cathrine
(2022).
"The post-it note just said leukemia” - experiences of teachers and local stakeholders of young childhood cancer survivors attending school – a qualitative study from the PACCS group .
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Lie, Hanne Cathrine; Anderssen, Sigmund Alfred; Rueegg, Corina Silvia; Raastad, Truls; Grydeland, May & Thorsen, Lene
[Show all 21 contributors for this article]
(2022).
The Physical Activity and Fitness in Childhood Cancer Survivors (PACCS) Study: Protocol for an International Mixed Methods Study.
JMIR Research Protocols.
ISSN 1929-0748.
11(3).
doi:
10.2196/35838.
Show summary
Methods
Results
Discussion
References
Abbreviations
Copyright
Abstract
Background: Survivors of childhood cancer represent a growing population with a long life expectancy but high risks of treatment-induced morbidity and premature mortality. Regular physical activity (PA) may improve their long-term health; however, high-quality empirical knowledge is sparse.
Objective: The Physical Activity and Fitness in Childhood Cancer Survivors (PACCS) study comprises 4 work packages (WPs) aiming for the objective determination of PA and self-reported health behavior, fatigue, and quality of life (WP 1); physical fitness determination (WP 2); the evaluation of barriers to and facilitators of PA (WP 1 and 3); and the feasibility testing of an intervention to increase PA and physical fitness (WP 4).
Methods: The PACCS study will use a mixed methods design, combining patient-reported outcome measures and objective clinical and physiological assessments with qualitative data gathering methods. A total of 500 survivors of childhood cancer aged 9 to 18 years with ≥1 year after treatment completion will be recruited in follow-up care clinics in Norway, Denmark, Finland, Germany, and Switzerland. All participants will participate in WP 1, of which approximately 150, 40, and 30 will be recruited to WP 2, WP3, and WP 4, respectively. The reference material for WP 1 is available from existing studies, whereas WP 2 will recruit healthy controls. PA levels will be measured using ActiGraph accelerometers and self-reports. Validated questionnaires will be used to assess health behaviors, fatigue, and quality of life. Physical fitness will be measured by a cardiopulmonary exercise test, isometric muscle strength tests, and muscle power and endurance tests. Limiting factors will be identified via neurological, pulmonary, and cardiac evaluations and the assessment of body composition and muscle size. Semistructured, qualitative interviews, analyzed using systematic text condensation, will identify the perceived barriers to and facilitators of PA for survivors of childhood cancer. In WP 4, we will evaluate the feasibility of a 6-month personalized PA intervention with the involvement of local structures.
Results: Ethical approvals have been secured at all participating sites (Norwegian Regional Committee for Medical Research Ethics [2016/953 and 2018/739]; the Oslo University Hospital Data Protection Officer; equivalent institutions in Finland, Denmark [file H-19032270], Germany, and Switzerland [Ethics Committee of Northwestern and Central Switzerland, project ID: 2019-00410]). Data collection for WP 1 to 3 is complete. This will be completed by July 2022 for WP 4. Several publications are already in preparation, and 2 have been published.
Conclusions: The PACCS study will generate high-quality knowledge that will contribute to the development of an evidence-based PA intervention for young survivors of childhood cancer to improve their long-term care and health. We will identify physiological, psychological, and social barriers to PA that can be targeted in interventions with immediate benefits for young survivors of childhood cancer in need of rehabilitation.
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Holmen, Heidi; Mengshoel, Anne Marit; Thoresen, Lisbeth; Larsen, Marie Hamilton; Eik, Hedda & Borge, Christine Råheim
(2021).
En ubetydelig brikke.
Dagsavisen.
ISSN 1503-2892.
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Larsen, Marie Hamilton; Larsen, Elna Hamilton; Ruud, Ellen; Mellblom, Anneli; Helland, Sunniva & Lie, Hanne Cathrine
(2021).
I have to do things different, but make it work - childhood cancer survivors experience of self management in daily living.
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Larsen, Marie Hamilton; Strumse, Yndis S.S.; Borge, Christine Råheim; Andersen, Marit Helen & Wahl, Astrid Klopstad
(2020).
Viktige sammenhenger mellom aleksitymi og helsekompetanse hos pasienter med psoriasis som har deltatt i klimabehandling.
BestPractice Nordic.
ISSN 1902-7583.
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Ålykkja, Anette; Ruud, Ellen; Larsen, Marie Hamilton; Vatne, Torun Marie & Lie, Hanne Cathrine
(2019).
Available, but not always accessible: A nationwide, qualitative study of multidisciplinary healthcare providers' experiences with follow-up care after paediatric brain tumour.
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Larsen, Marie Hamilton
(2019).
Helsekompetanse- en oversett faktor i oppfølging av personer med psoriasis?
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Larsen, Marie Hamilton; Hagen, Kåre Birger; Krogstad, Anne Lene & Wahl, Astrid Klopstad
(2019).
Samvalg (shared decision-making) og psoriasis: En systematisk oversiktsartikkel av kvalitative og kvantitative studier .
BestPractice Dermatologi.
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Larsen, Marie Hamilton
(2019).
QALY i en behandlingsstudie .
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Haraldstad, Kristin; Wahl, Astrid Klopstad; Andenæs, Randi; Andersen, John Roger; Andersen, Marit Helen & Elisabeth Grov, Beisland
[Show all 24 contributors for this article]
(2018).
A systematic snapshot review of quality of life research in medicine and health sciences.
Show summary
Background: Quality of life (QOL) has become established as a central concept and target for research and practice in the field of health and medicine. However, QOL is a complex concept that is interpreted and defined differently within and between disciplines, and so is also the case in health and medicine. Thus, there is a continuing philosophical debate about the meaning and content of QOL and how it should be measured.
Aim: The aim of the present study was to perform a review of QOL research in medicine and health, and describe country of origin, target groups, instruments, design and conceptual issues
Methods: A Systematic snapshot review were conducted with literature searches in the databases Scopus, covering Embase, MEDLINE, CINAHL and PsycINFO, to identify research studies on QOL and Health-related quality of life (HRQOL) published during one random week in November 2016. To evaluate the conceptual and methodological rigor, we used the 10 predefined criteria developed by Gill and Feinstein.
Results: The findings show that QOL research is truly international, involves a variety of target groups, uses different research designs and a whole host of QOL measures. When it comes to evaluation according to the criteria developed by Gill and Feinstein, most articles still have a low-quality score; only 13 % of the articles provided a definition of the concept of QOL, few studies (6%) distinguished QOL from HRQOL. Criteria that were fulfilled most frequently were; i) stating the domains of QOL to be measured, ii) giving a reason for choosing the instruments they used, and iii) aggregating the results from multiple items.
Conclusion. Knowledge about QOL is important for understanding the consequences of illness and treatment, and for medical decision-making. However, based on the current evaluation of the methodological and conceptual clarity of QOL research, we conclude that most QOL studies in health and medicine have conceptual and methodological challenges.
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Larsen, Marie Hamilton; Borge, Christine Råheim; Staalesen, Yndis & Wahl, Astrid Klopstad
(2018).
Health literacy - a new pierce of The puzzle in psoriasis? .
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Larsen, Marie Hamilton; Krogstad, Anne-Lene & Wahl, Astrid Klopstad
(2017).
Aleksitymi, sykdomsforståelse og self-management kompetanse I psoriasiskontekst.
BestPractice Dermatologi.
8(27),
p. 8–12.
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Larsen, Marie Hamilton
(2017).
Motiverende samtaler til pasienter med psoriasis.
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Wahl, Astrid Klopstad; Larsen, Marie Hamilton & Krogstad, Anne Lene
(2016).
Psoriasispasienters kunnskap om sykdom og behandling.
BestPractice Dermatologi.
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Larsen, Marie Hamilton; Wahl, Astrid Klopstad; Krogstad, Anne Lene & Aas, Eline
(2016).
Kostnad per QALY analyse av motiverende samtaler som self-management støtte etter klimabehandling for pasienter med psoriasis.
BestPractice Dermatologi.
7(22),
p. 10–14.
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Larsen, Marie Hamilton; Krogstad, Anne Lene & Wahl, Astrid Klopstad
(2016).
Motiverende samtaler etter klimabehandling gir mindre psoriasisutslett og positiv effekt på sykdomsforståelse, livskvalitet og mestringstro.
Hud og Helse.
p. 21–23.
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Larsen, Marie Hamilton
(2015).
Self-management støtte til kronisk syke- en utfordring for sykepleiere?
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Larsen, Marie Hamilton
(2015).
Psoriasis og klimabehandling – effekt av motiverende samtaler på helseøkonomiske parametre.
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Langeland, Eva; Robinson, Hilde Stendal; Moum, Torbjørn Åge; Larsen, Marie Hamilton & Wahl, Astrid Klopstad
(2013).
Positive mental health among people with psoriasis.
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Langeland, Eva; Robinson, Hilde Stendal; Moum, Torbjørn Åge; Larsen, Marie Hamilton & Wahl, Astrid Klopstad
(2013).
Positive mental health among people with psoriasis.
Quality of Life Research.
ISSN 0962-9343.
22,
p. 10–11.
doi:
10.1007/s11136-013-0543-1.
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Langeland, Eva; Robinson, Hilde Stendal; Larsen, Marie Hamilton; Polesie, Anne Lene Krogstad; Moum, Torbjørn Åge & Wahl, Astrid Klopstad
(2012).
Sense of coherence among people with psoriasis.
Quality of Life Research.
ISSN 0962-9343.
21,
p. 81–82.
Show summary
Aims:
The aims for the present study is to investigate Sense of Coherence (SOC); the central concept in salutogenesis and its relation to people with psoriasis by exploring the effect on SOC as a result of climate therapy and investigate factors that predict change in SOC among people with psoriasis.
Method:
The present study has a prospective design, including a baseline assessment and one follow up in relation to a 3 week climate therapy program. A total of 254 adults with psoriasis participated. SOC was measured by the Sense of Coherence questionnaire (SOC-13), illness perception by using the Revised Illness Perception Questionnaire (IPQ-R) and positive and active engagement in life was measured by the positive and active engagement subscale from the Health Education Impact Questionnaire (HeiQ) (all Norwegian versions). To evaluate possible change in SOC score from baseline to follow-up paired samples T-test was performed. With regard to investigate the predictive value of illness perception versus positive and active engagement in life on SOC, multiple linear regression analysis was used.
Results:
SOC improved significantly before to after climate therapy. Results show a significant statistical change (p < 0.001) in SOC from baseline to follow-up with a difference of 2.6, (95% C.I: 1.6-3.6). Furthermore, the attitude of positive and active engagement in life (standardized beta coefficient .22, P =. 0.002) and illness perception –coherence dimension (standardized beta coefficient .15, P =. 0.04) predict change in SOC.
Conclusion:
This is the first study that investigates the effect on SOC as a result of climate therapy. SOC significantly improved before to after climate therapy. Further the results indicate that improving positive and active engagement in life and a coherent understanding of the illness might provide important opportunities to improve SOC among people with psoriasis. We need more studies that investigate SOC among people with psoriasis undergoing climate therapy and what factors that predict positive change in SOC.
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Langeland, Eva; Robinson, Hilde Stendal; Larsen, Marie Hamilton; Polesie, Anne Lene Krogstad; Moum, Torbjørn Åge & Wahl, Astrid Klopstad
(2012).
Sense of coherence among people with psoriasis.
