Merete Kristin Tschamper

• Nordahl Karterud, Hilde; Nakken, Karl Otto; Lossius, Morten Ingvar; Tschamper, Merete Kristin; Ingebrigtesen, Trine & Henning, Oliver Johannes (2024). Young people diagnosed with psychogenic nonepileptic seizures (PNES) years ago − How are they now? Epilepsy & Behavior. ISSN 1525-5050. 157. doi: 10.1016/j.yebeh.2024.109874.
• Henning, Oliver Johannes; Ystad, Yngve; Molteberg, Ellen; Bjørnvold, Marit; Tschamper, Merete Kristin & Almåsbak, Grete [Vis alle 7 forfattere av denne artikkelen] (2024). Undervisning omepilepsitil pasienter og pårørende. Tidsskrift for Den norske legeforening. ISSN 0029-2001. 144(2). doi: 10.4045/tidsskr.23.0794.
• Tschamper, Merete Kristin; Larsen, Marie Hamilton; Wahl, Astrid Klopstad & Jakobsen, Rita (2023). Developing and maintaining health literacy: A continuous emotional, cognitive, and social process for parents of children with epilepsy—A qualitative study. Epilepsy & Behavior. ISSN 1525-5050. 142. doi: 10.1016/j.yebeh.2023.109222.
• Wahl, Astrid Klopstad; Hermansen, Åsmund; Tschamper, Merete Kristin; Osborne, Richard H.; Helseth, Sølvi & Jakobsen, Rita [Vis alle 7 forfattere av denne artikkelen] (2022). The Parent Health Literacy Questionnaire (HLQ-Parent). Adaptation and validity testing with parents of children with epilepsy. Scandinavian Journal of Public Health. ISSN 1403-4948. doi: 10.1177/14034948221123436. Fulltekst i vitenarkiv Vis sammendrag

  Aims: The aim of this study was to adapt the Health Literacy Questionnaire (HLQ) in English and Norwegian for use with parents. Methods: The research group evaluated all HLQ items and, where relevant, modified them to refocus the attribution of care to that of a child by a parent. Five cognitive interviews with parents were undertaken to gain a detailed depiction of the meanings and processes they used to respond to the HLQ items. Assessment of the psychometric properties of the revised HLQ was undertaken using data from a cross-sectional survey of 254 parents of children with epilepsy. Analysis included internal consistency (Cronbach’s alpha) and confirmatory factor analysis (CFA). Results: Some 22 out of 44 items and the names of three domains were modified (e.g. attribution changed from ‘me’ to ‘my child’). Cognitive interviews indicated that parents interpreted the HLQ-Parent items in the way intended. All but three factor loadings were high to acceptable. All nine HLQ scales showed satisfactory to good internal consistency (Cronbach’s alpha 0.70 to 0.87). When fitting one-factor CFA models, correlated residuals were required for four scales to generate an acceptable fit. One scale, ‘8. Ability to find good health information’, required inclusion of two correlated residuals to generate an acceptable CFA model fit, indicating that further work on this scale is warranted. Conclusions: The results from both the adaptation process and the CFA analysis supported the relevance, understanding and theoretical structure of the instrument in a parental context.

• Larsen, Marie Hamilton; Mengshoel, Anne Marit; Andersen, Marit Helen; Borge, Christine Råheim; Ahlsen, Birgitte & Dahl, Kari Gire [Vis alle 15 forfattere av denne artikkelen] (2022). “A bit of everything”: Health literacy interventions in chronic conditions – a systematic review. Patient Education and Counseling. ISSN 0738-3991. 105(10), s. 2999–3016. doi: 10.1016/j.pec.2022.05.008. Fulltekst i vitenarkiv
• Tschamper, Merete Kristin; Wahl, Astrid Klopstad; Hermansen, Åsmund; Jakobsen, Rita & Larsen, Marie Hamilton (2022). Parents of children with epilepsy: Characteristics associated with high and low levels of health literacy. Epilepsy & Behavior. ISSN 1525-5050. 130(108658), s. 1–8. doi: 10.1016/j.yebeh.2022.108658. Fulltekst i vitenarkiv Vis sammendrag

  Parents of children with epilepsy play a key role in the management of their child’s condition. Their level of health literacy (HL), which refers to their ability to seek, understand, assess, remember, and utilize health information, is essential for handling the child optimally. The aim of this study was to investigate characteristics associated with high and low levels of different dimensions of HL in parents. HL was assessed with the multidimensional Health Literacy Questionnaire (parents’ version) and the electronic Health Literacy Scale, using data from a cohort of 254 parents of children <12 years. Bivariate correlation and multiple hierarchal linear regression (STATA version 16 SE) were used to investigate variables associated with HL. Self-efficacy (St. β = 0.14–0.34) was the only variable that predicted higher scores on every HL scale. Being older than 35 years (St. β = 0.18–0.21), level of education (St. β = 0.16–0.27), and the child having a coordinator of services (St. β = 0.16–0.28) were associated with higher scores, while sick leave due to the child’s epilepsy (St. β = −0.13 to −0.16), child comorbidities (St. β = −0.15 to −0.19), and higher levels of mental distress (St. β = −0.13 to −0.19) were associated with lower scores in several of the different HL dimensions. A total of 44.8% of the parents scored over the cutoff (≥1.85) predicting a mental disorder on the Hopkins symptom checklist. This is the first study to investigate multidimensional parental HL in a childhood epilepsy context. Our results highlight the need to investigate multiple variables, especially mental distress, to determine characteristics that may predict low parental HL. Further qualitative studies are needed to explore the underlying reasons for the parents’ HL scores and to develop inventions tailored to meet different HL needs.

• Tschamper, Merete Kristin & Systad, Silje (2021). Rare, epilepsy-related disorder including intellectual disability – A scoping review of caregivers’ identified information needs. Journal of Intellectual Disabilities. ISSN 1744-6295. 26(3), s. 704–717. doi: 10.1177/17446295211002348.
• Tschamper, Merete Kristin Bustetun & Jakobsen, Rita (2019). Parents’ experiences of videoconference as a tool for multidisciplinary information exchange for children with epilepsy and disability Journal: Journal of Clinical Nursing . Journal of Clinical Nursing (JCN). ISSN 0962-1067. 28(9-10), s. 1506–1516. doi: 10.1111/jocn.14755. Vis sammendrag

  Aims and objectives The aim for this study was to explore the parents' experiences with the multidisciplinary information exchange between different levels of the health‐ social and school services using videoconference (VC). Background Children with epilepsy and disability are in need of long‐term multidisciplinary help and support. The information exchange between the child's providers of support is challenging. Scant attention has been paid to the parents' experiences of the information exchange. Design A qualitative study with a phenomenological‐ hermeneutical research approach. Method Children with epilepsy and disability had undergone a multidisciplinary assessment in a hospital in the tertiary health service followed by information exchange with each child's local support service using VC. Five parents were interviewed individually within a week after the VC. The COREQ checklist was used in the process of reporting on the empirical material. Results The increased local participation in the VC and the knowledge translation between the professionals made the parents save time, as they did not have to explain the written reports to each provider locally. The impact of technology created an emotional distance to the person on the screen and the information exchanged that some enjoyed while others disliked. The quality of the relationships to the professionals seemed to be crucial for the parents to feel safe talking about sensitive tasks. Conclusion The parents prefer VC as a tool for information exchange to traditional face‐to‐face meetings as it enables discussions between professionals that might prevent treatment misunderstandings. They experience the method as timesaving and patient centred. Relevance to clinical practice Professionals should be aware of the possible side effects of the impact of technology that might affect the interaction and the information exchange in a negative way. The findings are likely to be transferable beyond the current context.

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