About the project
Living with IBD may be challenging, in this project we will examine newly diagnosed patients experience of the disease, and factors that may impact health- related quality.
Patient experiences
Multiple factors, both disease-specific and non-disease-specific, may impact health-related quality of life in patients with IBD. The patient’s perspective of living with the disease is important knowledge to provide individualized psychosocial support in routine follow-up and care.
Aims
The project is based on results from a population-based cohort. The aim is to describe health-related quality of life in patients with IBD the first three years after they have been diagnosed, and to identify the demographic and psychosocial factors, as well as disease activity markers associated with HRQoL.
Selected publications
- Olsen BC, Opheim R, Kristensen VA, Høivik ML, Lund C, Aabrekk TB, Johansen I, Holten K, Strande V, Bengtson MB, Ricanek P, Detlie TE, Bernklev T, Jelsness-Jørgensen LP, Huppertz-Hauss G. Health-related quality of life in patients with newly diagnosed inflammatory bowel disease: an observational prospective cohort study (IBSEN III). Qual Life Res. 2023 Oct;32(10):2951-2964. doi: 10.1007/s11136-023-03435-9. Epub 2023 May 23. PMID: 37219727; PMCID: PMC10473983.